Cameron Boyce’s mom draws attention to epilepsy on Mother’s Day

Cameron Boyce, who starred in the Disney Channel's "Jessie" from 2011 to 2015, died in the sleep of sudden unexpected death in epilepsy in July 2019 at the age of 20.
Cameron Boyce & # 39; s death & # 39; unexpectedly, & # 39; says the coroner

Although he was diagnosed with epilepsy at 17, Libby Boyce said she had never heard of SUDEP before her son's death. But she feels that the relationship with other mothers who have lost a child to SUDEP has given her life meaning.

"The last ten months have been life-changing for me in a way that is beyond words. You can't compare it to anything because it's a trauma that's unlike anything in the world. It's created a gaping hole that's raw and gut wrenching," Libby Boyce wrote in a letter published Friday ABC's Good Morning America.

"Mother's Day is a dear day for mothers across the country. For others, it may be a day of reflection for those who have a challenging relationship with their children, or a day of regret for those who never had children; or it may be a day of pure grief for those who have lost a child. "

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The letter, she wrote, was also her way of paying homage to "all the tributes to SUDEP mommy warriors living with this terrible burden."

How seizures can kill people with epilepsy in sleep
Every year, roughly 1 in 1,000 People with epilepsy die suddenly. The doctors call these deaths SUDEP too short, and most occur during or after seizures, which can cause people to stop breathing and can trigger dangerous irregular heartbeats.
An estimated 3.4 million Americans have epilepsy, according to US Centers for Disease Control and Prevention, and those with uncontrolled seizures are at higher risk of unexpected death.
Cameron Boyce's death shines a light on deadly stigma

Libby Boyce said she refuses to believe that her son died in vain.

"Epilepsy can be a deadly medical condition, but still few people think of epilepsy as potentially life-threatening," she wrote. "It's something that has been swept under the rug for too long, and I hope sharing Cameron's story and the stories of other SUDEP mum fighters will be the catalyst for change."

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Boyce's family also showed up Cameron Boyce Foundation last year to raise funds in memory of him.

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