Although he was diagnosed with epilepsy at 17, Libby Boyce said she had never heard of SUDEP before her son's death. But she feels that the relationship with other mothers who have lost a child to SUDEP has given her life meaning.
"Mother's Day is a dear day for mothers across the country. For others, it may be a day of reflection for those who have a challenging relationship with their children, or a day of regret for those who never had children; or it may be a day of pure grief for those who have lost a child. "
The letter, she wrote, was also her way of paying homage to "all the tributes to SUDEP mommy warriors living with this terrible burden."
Libby Boyce said she refuses to believe that her son died in vain.
"Epilepsy can be a deadly medical condition, but still few people think of epilepsy as potentially life-threatening," she wrote. "It's something that has been swept under the rug for too long, and I hope sharing Cameron's story and the stories of other SUDEP mum fighters will be the catalyst for change."